Hypertrophic Cardiomyopathy Association is a not for profit 501(c) (3) organization formed in 1996 to provide information, support and advocacy to patients, their families, the medical community, and the public about hypertrophic cardiomyopathy. “The Hypertrophic Cardiomyopathy Association is not just a cause or a hobby for Lisa Salberg, founder and CEO of HCMA. It’s her life.” http://www.4hcm.org
Sudden Cardiac Awareness Foundation is a mission-driven organization, dedicated exclusively to raising awareness and saving lives threatened by sudden cardiac arrest. “Our website is a comprehensive information clearinghouse on sudden cardiac arrest.” http://www.sca-aware.org, Joining SCA community, (The difference between a heart attack and sudden cardiac arrest)
Children’s Cardiomyopathy Foundation (CCF) is a national, non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle. CCF is dedicated to accelerating the search for cures while improving diagnosis, treatment, and quality of life for children affected by cardiomyopathy. The Foundation hopes to also fill the void in physician and patient education and support. http://www.childrenscardiomyopathy.org.
American Heart Association. Their mission: to build healthier lives, free of cardiovascular diseases and stroke. That single purpose drives all we do. http://www.heart.org, The importance of learning CPR
The Compassionate Friends. Their mission: When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. TCF provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family. http://www.compassionatefriends.org
HelpGuide.org is a non-profit organization that provides mental health information, resources, knowledge, and encouragement. “We believe that with support and self-help options, you can understand, prevent, and resolve many of life’s challenges.” http://helpguide.org
Hospice Foundation of America provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the U.S. health care system and the role of hospice within it. Your local hospice may be used as a resource in finding grief support. http://www.hospicefoundation.org, Help in finding a support group
Open to Hope is an online grief and loss support community where people can share inspirational stories of loss and love. Their mission: Helping people find hope after loss. “We encourage our visitors to read, listen, share, and contribute with honesty and compassion.” www.OpentoHope.com
Psych Central is the Internet’s largest and oldest independent mental health social network. It is wholly owned and operated by Dr. John Grohol. Since 1995, it has been run by mental health professionals offering reliable, trusted information and over 200 support groups to consumers. We are today’s modern voice for mental health information, emotional support and advocacy. http://psychcentral.com
Rehab Spot, a nationally recognized drug and alcohol treatment facility, helps those struggling with addiction and their families find the information, support, and resources needed to get help. Grief and addiction are tragically connected, with one often causing or worsening the other. https://www.rehabspot.com
Legacy.com, “Where life stories live on,” is a comprehensive resource for online obituaries and Web-based Memorialization. By making interactive memorial content accessible directly via the websites of newspapers and funeral homes, Legacy.com helps a fast-growing number of people expand the ways in which they can express condolences and share remembrances of loved ones. Legacy.com.
Tributes.com, “Because every life has a story,” is the online source for current local and national obituary news and a supportive community where friends and family can come together during times of loss and grieving to honor the memories of their loved ones with lasting personal tributes. http://tributes.com.
Mothers Against Drunk Driving (MADD). The mission of Mothers Against Drunk Driving is to stop drunk driving, support the victims of this violent crime and prevent underage drinking. http://www.madd.org
National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD provides information, advocacy, research, and patient services to help all patients and families affected by rare diseases. http://www.rarediseases.org
Sandy Hook Promise (national nonprofit organization) founded by family members whose loved ones were killed at Sandy Hook Elementary School on December 14, 2012. Intent: honor all victims of gun violence by turning our tragedy into a moment of transformation. https://www.sandyhookpromise.org
Natural Resources Defense Council (NRDC). Their purpose is to safeguard the Earth: its people, its plants and animals and the natural systems on which all life depends. Ultimately, NRDC strives to help create a new way of life for humankind, one that can be sustained indefinitely without fouling or depleting the resources that support all life on Earth. http://www.nrdc.org